Contributed by Bob “Oxygen Man” Rawlins, oxygen user and consultant to CAIRE Inc. ~
Everyone has a favorite word, good or bad, lol.
In the working world there are many. No matter what your profession some or most words fit across all the working channels.
Sweet. Amazing. Incredible. Beautiful. All the oldest of old clichés. 😊
Spot-on, started to be a word used quite a bit in the digital world as I remember.
I traveled to Ireland and quickly learned that Brilliant was used for everything. I mean everything. Took me a while to get used to it, I thought they were being overly observant of my aptitude, only to learn I was as smart as that Brilliant-looking pastry dish.
When traveling to England, Blinder, was a word I heard around and in the working world. A lucky outcome by someone, we say Lucky. 😊
Words can mean so much and different things to different people.
On this journey, there are many words I’ve learned to say and live by.
Attitude, important in most everything. But a positive attitude is a must when you are fighting any disease.
And it has proven to me many times that it works!
So, I had my three month check-in this week.
Went through all those wonderful breathing tests including the 6-minute walk test.
This last six weeks have been tough for me personally. Dealing with the weather, isolation, COVID-19 awareness, the kids being in school and so on.
I was feeling, Tired before I even got there. Another word we tend to use quite often during this journey, correct?
I sensed that the 6-minute walk would be a bit challenging. As predicted, I had to stop short because my Oxygen dropped to 78. Not so Brilliant.
The breathing tests also were a bit tougher to complete as well. As the results showed, I had dropped by 10% on most of the important ratios. Not so Lucky either.
However, what can you do but strive forward? I can only control what I can control. I’m sure you can all empathize with the Disappointment I felt.
The first word I thought of was Anger. What did I do wrong this past three months? Did I push too hard, not hard enough? Did I exercise enough? Its been difficult since all the pulmonary rehab has been canceled due to the pandemic. But still … did I not do enough walks or other activities?
My Cleveland Clinic doctor is amazing. She said, “Don’t beat yourself up. Those things don’t necessarily change these results. Scarring is something we all face, and this disease can progress.” New word, Reassuring. Ok, but not my cup of tea at that moment.
So, as we discussed next steps and next course of action. There were many words used. Prednisone, Neurontin, Lung Volumes, Breathing, Disappointment, and so on.
As we continued to discuss, a particularly important word came to mind – Stability.
That is an important word in almost everything we do. We want our lives to have some Stability in them. With work, family living, and everyday activities. With as little Chaos as possible, right?
Chaos wasn’t there, just a little Disappointment.
Stability is the word on this journey. In the past 4.5 years that has been a surprisingly good word. With some diligent exercise planning, diet, and continued mind over matter thoughts, this can be achieved.
For most of us our baseline will change on this journey. As this changes we endeavor to hope to remain as stable as possible and accept the things we can’t control.
Being able to adjust to a new baseline requires some ‘tude adjustments no doubt. Becoming diligent in our approach to new goals and trying to accept as soon as possible that this disease over time will progress.
We must Live our lives as best we can.
A couple other words come to mind as well.
Love. Kindness. Support.
If we all could continue to remember those words that don’t cost us anything, what a better place we would all be in.
Until next time.
Love you all,
Coach “Oxygen Man,” Bob
Bob Rawlins, 61, of Medina, Ohio, is husband to Terese and father to their 16-year-old triplets, a soccer coach, a hospital volunteer, band dad and chaperone, and marketing guru. He uses a FreeStyle Comfort portable oxygen concentrator and a transportable oxygen concentrator for overnight travel.
The contents of this blog post are not intended to substitute for professional medical advice. Please consult your physician for personalized medical advice. When using any oxygen therapy device please consult the applicable product instructions for use for product indications, contraindications, warnings, precautions, and detailed safety information.
Image by Laszlo Zakarias from Pixabay